Brain cancer sure takes a lot out of you. I’ve been cured for seven years and I still can’t exercise without having to take pain medication afterwards. My eyes and head flare up at the first sign of cardiovascular activity. That is what happened today. I figured I would go for a walk for about 30 minutes. I hadn’t gone for a long walk in awhile, but I just wanted to see if I had progressed at all in the exercise field. Sure enough, about halfway through my walk, which was not a brisk walk, just a garden-variety walk, I noticed pressure behind my eyes and a general overall headache. I had to keep walking or I wouldn’t get back home. So I kept walking and now my eyes feel really stiff and strained. I guess I should really get to accepting my limitations. But I want so badly to be able to exercise. It seems we have a catch-22 here. I don’t have problems if I walk a short distance slowly, but any strenuous activity puts me feeling much worse. I guess it is the price I paid for having brain cancer and this has been a constant for seven years.
Being a brain cancer survivor comes with positives and negatives. There are things I probably will never be able to do again. And there is wisdom that I have gained from this experience. I no longer sweat the small stuff. The small stuff is inconsequential to me. It has made me into more of a big picture type of guy. It has made me think all the questions of why we are here and what consciousness itself is. I’ve had a lot of time to think about so many things concerning the nature of this reality. I’ve been able to read online via ReadPlease2003 (to prevent any further eyestrain) thousands of articles about a variety of topics that I have an interest in. While it is extremely difficult for me to read pages of a book without experiencing pain and eye strain, I have the whole Internet at my disposal. Life has not been easy, but there is always some way to adapt. I’ve heard stories of blind people using the Internet using a program called Jaws.
I’ve maintained a full-time job for about a year now. I have benefits and vacation time. I work the night shift, mostly because it is easier for me on so many levels and I don’t always have to be 100%. It’s easy to fix up shelving and take care of the occasional customer even if I’m not feeling my best. It is a job that I can do with the conditions that I have and it has worked out very nicely for me. I always get great reviews from my boss and supervisors. I am even en route to becoming a supervisor. So, I’m making decent money and working full-time, which is a hell of a lot better than I thought my life would turn out after all the problems I’ve had after cancer.
I have had periods of months where I was in severe pain in my eyes and head 24 hours a day with no relief in sight. I have been discouraged, depressed, and frustrated to no end. But I always seem to come out of those periods to a functional existence. If I push myself too hard, I will pay for it for at least a couple of days with severe headaches. My tumor is gone, but for some reason, my brain never healed completely. I have a dural leak in my brain that is very vulnerable to opening after any strenuous activity. Life has not been easy for me these past 8 years. But I’m still standing. I’m still strong. This has to be the best year I’ve had since I was 15, which is saying quite a lot. That was before I had the tumor.
Now that I’ve got all this positive momentum going, a lot of times I want to push myself harder, but every time I do, I pay for it. So I just ride the wave I’m riding. I wish I could do more, but unfortunately, unless I want to totally destroy what I’ve got, I need to play it safe when it comes to doing things. I need ample time for relaxation. I need to get good sleep. If I don’t, the same rules apply as when I overwork myself. I feel kind of fragile for someone so young (24). But, like I’ve said, I can’t change what happened to me and it has afforded me benefits as well. I inspire others by my actions. I overcame something that was potentially fatal to become a productive member of society.
I just thought I would write something that shows how I live after brain cancer. It may not be all roses, but at least I still have my mind and for the most part, my overall health. I could have had a relapse and more radiation or even chemotherapy. I can say that for what happened to me, I’m pretty damn lucky. I could have ended up in a nursing home if they botched my 9 hour surgery. The surgery where they actually separated both halves of my brain to get to the pineal gland to extract a piece of the tumor. My headache seems to be subsiding now due to Fioricet. Thank the Lord for that.
I think somewhere down the road I’d like to become some sort of motivation speaker for cancer patients. Of course, being humorous in my speeches is second nature for me. I’ve got plenty of material. I want to show people that yes, there is life after cancer, even if it isn’t always easy. The fact is that you survived. You beat the odds. You are living proof that cancer can be contained. It may be hard to eradicate cancer, but the rewards are timeless. Your perspective will change dramatically. If you’ve beaten this, what else can you overcome. What else can you accomplish? Your fear should no longer hold you back. If it isn’t life threatening, then what are you so afraid of? You’ve beaten cancer, so you can do anything.
My speeches would go somewhere along those lines. I know that my calling is to raise people’s awareness and allow them to become who they feel inspired to become. It may not always be possible to become what you most want to, but to not even make the attempt is foolish and cowardly. I know that we all could become greater than we are just by committing to becoming a better person each day. Small steps or large steps, you decide. We can all move away from fear and towards love just by deciding to. And what an amazing world we will have once everyone is on the love side. Imagine a world without fear. Imagine how wonderful such a world would be. That is my ultimate goal. It would be paradise.
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